Extremely preterm follow-up data
Neurological and developmental problems are common among surviving extremely preterm and/or extremely low birthweight babies. Impairments can include cerebral palsy, blindness, deafness and developmental delay.
Outcome data is collected at 2-3 years corrected age for infants born at less than 28 weeks gestation and/or weighing less than 1,000 grams at birth who survived to discharge to home. These data are then linked to the corresponding neonatal dataset. The first year of follow-up data collection was for infants born in 2009.
The follow-up data dictionaries and supplementary materials are available for download for the following birth years: