Data dictionaries

Neonatal data

Maternal, antenatal and neonatal data are collected for high-risk neonates who meet ANZNN registration criteria. The registration hospital is responsible for reporting ALL relevant data in the baby's stay up to discharge to home or death, including data from neonatal transport and transfer units.

The neonatal data dictionaries and supplementary materials are available for download for the following birth years:

2016 births

2016 Data dictionary
The data dictionary includes data labels, definitions and coding, and itemises data revisions for the birth year.

2016 Data labels - flat file
Data labels are available in .xlsx format for assisting with setting up data extract files for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2016 Data labels - separate tables
Data labels are available in .xlsx format for assisting with setting up data extract files in separate table format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive. The separate tables include the core Baby Data table and supplementary Congenital Anomalies, Infections, Surgeries, Transfers and Causes of Death tables. These supplementary tables allow multiple rows per baby as applicable.

2016 Collection form
This form is provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

2017 births

2017 Data dictionary
The data dictionary includes data labels, definitions and coding, and itemises data revisions for the birth year.

2017 Data labels - flat file
Data labels are available in .xlsx format for assisting with setting up data extract files for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2017 Data labels - separate tables
Data labels are available in .xlsx format for assisting with setting up data extract files in separate table format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive. The separate tables include the core Baby Data table and supplementary Congenital Anomalies, Infections, Surgeries, Transfers and Causes of Death tables. These supplementary tables allow multiple rows per baby as applicable.

2017 Collection form
This form is provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

2018 births

2018 Data dictionary
The data dictionary includes data labels, definitions and coding, and itemises data revisions for the birth year.

2018 Data labels - flat file
Data labels are available in .xlsx format for assisting with setting up data extract files in flat format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2018 Data labels - separate tables
Data labels are available in .xlsx format for assisting with setting up data extract files in separate table format for batch upload to the ANZNN Data Capture System. These data labels are case sensitive. The separate tables include the core Baby Data table and supplementary Congenital Anomalies, Infections, Surgeries, Transfers and Causes of Death tables. These supplementary tables allow multiple rows per baby as applicable.

2018 Collection form
This form is provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

Chronic lung disease

For babies born at <28 weeks gestation in 2016 onwards, chronic lung disease will be measured quantitatively to determine physiological chronic lung disease status and to provide a comparable indicator of lung disease severity regardless of NICU practice (modified from Quine et al. 2006 Arch Dis Child Fetal Neonatal Ed 91:F409 and Walsh et al. 2004 Pediatrics 114:1305).

The following resources are available for download and are designed to be used in conjunction with the ANZNN Data Dictionary definitions:

Shift Test / Modified Walsh Oxygen Reduction Air Trial

ANZNN Shift Test for CLD protocol template
ANZNN Shift Test for CLD protocol template
The Protocol Template has been designed to assist member units to perform the Shift Test and Modified Walsh Oxygen Reduction Air Trial. This is available in .pdf format as well as Microsoft Word format to allow modification for use in your unit (eg. adding hospital logo).

ANZNN Parent Information Sheet for lung function assessment
ANZNN Parent Information Sheet for lung function assessment
The Parent Information Sheet is available in .pdf format as well as Microsoft Word format to allow modification for use in your unit (eg. adding hospital logo).

Extremely preterm follow-up data

Neurological and developmental problems are common among surviving extremely preterm and/or extremely low birthweight babies. Impairments can include cerebral palsy, blindness, deafness and developmental delay.

Outcome data is collected at 2-3 years corrected age for infants born at less than 28 weeks gestation and/or weighing less than 1,000 grams at birth who survived to discharge to home. These data are then linked to the corresponding neonatal dataset. The first year of follow-up data collection was for infants born in 2009.

The follow-up data dictionaries and supplementary materials are available for download for the following birth years:

2011 and 2012 births

2011 & 2012 Follow-up Data dictionary
The data dictionary includes data labels, definitions and coding, and itemises data revisions for the birth year.

2011 & 2012 Follow-up Data labels
Data labels are available in .xlsx format for assisting with setting up data extract files for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2011 & 2012 Follow-up Collection form
This form is provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

2013 births

2013 Follow-up Data dictionary
The data dictionary includes data labels, definitions and coding, and itemises data revisions for the birth year.

2013 Follow-up Data labels
Data labels are available in .xlsx format for assisting with setting up data extract files for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2013 Follow-up Collection form
This form is provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

2014 and 2015 births

2014 Follow-up Data dictionary
The data dictionary includes data labels, definitions and coding, and itemises data revisions for the birth year.

2014 Follow-up Data labels
Data labels are available in .xlsx format for assisting with setting up data extract files for batch upload to the ANZNN Data Capture System. These data labels are case sensitive.

2014 Follow-up Collection form
This form is provided for use in-house, for those units who wish to first collect their ANZNN data on hard copy forms from medical records. Please do not submit these forms to the ANZNN. Data should be entered and submitted electronically via the ANZNN Data Capture System.

Data submission

Upcoming deadlines

  • 2-3 year outcomes for 2014 births
    • Due 29th June 2018
  • Neonatal data for 2017 births
    • Due 31st August 2018

All data should be validated and submitted via the ANZNN Data Capture System.

Related pages

Registration criteria

Contact

Email: anznn@unsw.edu.au